Posted by kirstyes
The last couple of days have been an emotional rollercoaster so although I’ve done brief updates on Instagram and Facebook I haven’t felt up to writing a full blog post. But I started blogging about my IVF journey intending to post about the good, the bad and the ugly so here I am.
Egg Collection Day
Wednesday saw an early start to drive up to London with my parents for a my egg collection appointment. I’d had my trigger injection at 23.30 on Monday and then was injection free on the Tuesday which was nice after 16 days of nightly jabs. I tried to spend Tuesday relaxing and not getting too anxious. Easier said than done.
Wednesday morning was spent snoozing in the car whilst my dad drove and then panicking we wouldn’t arrive in time. I was asked to arrive at reception at 9.30am. We left Poole at 5.30am and arrived at the clinic at 9.30!! Ah well I thought – no time really to get anxious about the general anaesthetic – although I didn’t end up going down until nearer 11am so then I started to worry.
One of the benefits of having IVF at a private clinic was I got a private room. I also got to choose some lunch to have after my procedure having not been allowed to eat or drink from midnight. The nurse welcomed me and I had blood pressure, pulse, height and weight (joy) taken. My blood pressure was 119/80. I don’t think I’ve ever quite seen it so textbook. My pulse was over 110 – I think the speed walk from the tube station didn’t help. Height and weight showed I haven’t shrunk and I’m still pretty much where I was at my last Slimming World weigh in.
At some point the Dr came in and got me to sign a consent and offered to go through any questions I had. I’ve actually had a General Anaesthetic before when I broke my arm after a car accident so I got most of my anxieties about that out of the way then.
Over the course of the morning I was asked to confirm my name, date of birth, allergies, presence of metal work etc a number of times. They definitely made sure they had the right person. I couldn’t get my pineapple necklace off as I’d wrapped it around my wrist so it was taped down instead. Oddly I was comforted I still had this totem on.
I was also given a very fetching outfit of a purple one use gown, nude slipper socks, a dressing gown, and one use knickers that I promptly stuck my finger through when pulling up. I knew they’d pretty much rip them off to access my lady parts later so I wasn’t too worried about that. (In preparation I had re-shaved my lower legs and I had trimmed a little a few days before but hey I’m single and can’t be bothered with having unnecessary itching going on down there!!).
I wondered down to the ‘theatre’ with the nurse and a porter and my asthma inhaler and then was in a room adjacent to the theatre to be given my anaesthetic. The chap I was speaking to was friendly and we discovered some welshness in common (My mum and her family are from Wales) and we talked healthcare. The anaesthetist came and introduced herself and confirmed that I could/would have the canula in my inner elbow rather than the back of my hand (definitely preferable). Then I got hooked up to a blood pressure cuff. A sharp scratch as the needle went in. I was told that the anaesthetic was being trickled in and that I might taste it at the back of my throat or get a tingling face (I got the latter) and then I know absolutely nothing until I woke up in recovery less than an hour later. During egg collection they pass a needle up your vagina to your ovaries to collect the eggs – not something you’d probably want to be awake for.
In the recovery room every now and then the cuff would take my blood pressure – it was lower than earlier although fairly quickly returned to normal. I had an oxygen mask on and was coughing a little so was given my inhaler to take. I was asked by the recovery nurse how many eggs I had been expecting and I groggily said a max of two and she confirmed they had indeed retrieved two. I was very relieved. But also woozy so did later confirm that’s what I’d been told to make sure I hadn’t made it up.
She also asked to check a pad they’d put in place to make sure there was no major bleeding. There wasn’t. And it seems the pad had got stuck on my stomach so it was put back where it was meant to be!! There is very little dignity being a lady having this sort of intervention.
There was good camaraderie amongst the staff and talk of the football. My recovery nurse was Portuguese and one of her colleagues was Moroccan (or at least supporting Morocco). I asked him who was going to win. He said Portugal due to Ronaldo.
At one point the anaesthetist came back in to see everyone in her civvies instead of scrubs – her morning’s work obviously over.
At around 12.30 I was taken back upstairs and was able to tell mum the positive news and dad when he got back from a walk and my sister over the phone. By this time I was feeling quite awake – which is an unusual occurrence for me and that feeling lasted around an hour. I had a tiny bit of discomfort in my abdomen and where the canula was. Once again regular blood pressure and monitoring took place.
I had to call a nurse when I first wanted to get up and walk. I felt fine but they had “Call don’t fall” stickers up so I complied. Also I had nearly passed out the first time I got up after my last anaesthetic (however that was after well over 24 hours in bed rather than 1). I was fine and made my way to the en suite toilet for dad to point out my ripped knickers on the floor. I put my own back on. There was a tiny bit of blood (this is normal) so I kept the pad in place.
Then I wolfed down my food and a few glasses of water and the tablets I’d been unable to take in the morning. I let dad have the tea they bought. Didn’t fancy any milk. I had carrot and hummus sandwiches and granola with yoghurt and berries. It was actually tasty – or was I just starving.
An IVF nurse came to see me and asked the somewhat random and vague question if I knew what I was to do next. What she meant was to start taking progesterone pessaries the following morning and to await a call from the embryologists in the morning to let me know if the donor sperm had managed to fertilise my eggs. Progesterone pessaries are taken because where the eggs are collected the follicle doesn’t do what it normally does when you ovulate and release the relevant hormones. I think it also helps keep the womb lining thick and repair the holes caused by the needles. If you are to get pregnant by IVF usually women take these for the first 12 weeks. They are usually taken twice daily vaginally although occasionally need to be used rectally (such as on the day of egg transfer).
Finally at 2.30ish my final blood pressure measurement was taken and was back up to where it had started. Canula out clothes on. Paperwork completed and I was allowed home where we arrived about four hours later. I had snoozed most of the journey back. My sister popped round for hugs with some paracetamol and then I ate some comfort crumpets with melted cheese and I was in bed by 9pm with my alarm set for 9am so I’d be awake for the phonecall.
The call from the Embryologist and a mix up
Naturally I woke anxious about the outcome and felt my heart skip a beat when the phone rang at just after 9.30. A withheld number (as most hospital numbers are). It was the embryologist from the clinic. After confirming my name and date of birth I was informed that only one egg had fertilised normally and that they had booked me a transfer appointment for the following day – Friday at 10am and as long as everything went as planned that would be what would happen. I don’t really know what I felt. Obviously I had hoped for both to fertilise as if they had – at my age – they can implant two embryos to increase the chances of conception. But as people say it only takes one so there was still a chance things could work out.
I was on the phone to my family arranging our journey for the Friday when not ten minutes later the phone rang again from a withheld number. I put my parents on hold to answer it. It was the embryologist. She was sorry. She’d made a mistake and not properly read a note made by her colleague. Although one egg had fertilised it was showing signs of abnormality. My heart sank.
She went on to say her previous call was premature and to explain that although in other countries they do transfer such embryos because they are generally not viable (?why) that in the U.K. it is illegal. But they would check again at 10am (it was 9.47am) and 12pm to see how things were dividing. I started crying before I was able to put the phone down.
I had to phone my sister and parents back to tell them. They were angry and upset on my behalf.
At 10 the call came again saying nothing had changed and it wasn’t likely to. She apologised again for the earlier error. I felt numb. I barely spoke but sniffed trying to hold back tears. They would check again at 12 and the end of the day and if anything developed they would give me an appointment but that they would let my consultant know so I could arrange my follow up appointment to discuss what happened.
I private messaged close friends and family and a friend who has been through the process. My parents and sister popped by for hugs and tears. I’d already had hugs from my lodger. My parents were heading to Asda. I had only been able to pick up part of my pessary prescription from there before hand so had some still owing. Some I no longer need but had paid for. I asked my mum if they could collect as I didn’t think I could cope with that. I cried … again.
Now I don’t know if I misunderstood but I had expected a call back later to confirm once and for all. Nothing by 12. I had arranged to meet up with friends at a local coffee shop to get out of the house. More hugs and tears but also panini, tiffin and hot chocolate and paracetamol. Purely medicinal of course. A little girl was celebrating her 3rd birthday. We all sang to her. On the walk back home my friend and I went on the swings in the empty playground. I swung without moving my legs because my stomach was aching but it did feel good.
I e-mailed the fertility nurse from the satellite clinic to let her know as they don’t get informed automatically. I checked if this meant I didn’t have to continue with the pessaries.
I spent the rest of the day with my eyes leaking on and off. I did some shredding and ripping up of things. My stomach ached bending over to the shredder but I did it anyway.
I didn’t hear back from the clinic. I went to phone at 4.30 to find out that’s the time they close. I posted a quick update online as I know there were people who would be waiting to hear.
I worked on a sculpture I’d made to fix up bits that had cracked when it was dry. I responded to lots of lovely supportive messages from people on Facebook and Instagram. I tried to keep busy. Another friend had popped round some chocolates and a card but left them on the step kindly not wanting to put me under pressure to talk. My lodgers got me more chocolates. I’ll deal with the gain on Monday’s weigh in and hopefully put a line under it and move on.
I went to feed my sister’s cat. He let me cuddle him for 30 seconds. I fed and watered him and gave him a treat. Then he pissed off outside. Good to know some things don’t change.
Hope and Breaking/Dealing With Bad News
It still would have been hard to hear a no straight away this morning. The thing with this process is that a no can appear at many steps along the way. But to hear a yes followed by we made an error was extra gutting. I know mistakes are made but this is already such an emotive process. Your body is full of hormones too which certainly won’t help with producing rational emotions. I wrote a poem about how I felt.
Hope is a funny thing. We need it but it can be overdone. Everyone wants life to be easy. People want to tell you that the miracle will happen for you. That you’ll be one of the lucky ones when chances are that actually you might not be. At least not first time. In the clinic they went through the steps you’d take if the results were positive. Nothing was said about the negative initially. People need to be better prepared for all eventualities.
If you’ve read all of this. Bless you and thank you. I said to someone that I wanted to share to raise awareness because there are women and couples going through this every day. I want people to just think a little before asking some of the questions that trip off our tongues about when people plan to have a family because they may just be trying their damnedest without success. This is only my first attempt. I’ve lurked on forums and I know people who have had many failures and it’s devastating. But we all deal with it differently. I have chosen to share. Some people won’t want to or be able to. I want those who need to to feel that they can. To feel that social media doesn’t just have to be a highlights reel. We can share the lowlights too. We can help each other feel and cope with negative emotion. We can say I’m here for you – I don’t know what to say but I care. And you don’t need to fix things for people straight away. If something crap happens it’s normal to feel sad at first. It’s normal for people to want to vent without you having to offer a solution. Often there isn’t one. Or your solution won’t be there solution. Just listen and think – not what would I need but what do I think they would need – if you don’t know simply ask.
This isn’t the end of my journey so I will continue to share. I don’t know what the next steps will be apart from arranging to see the consultant to talk things through. I’m sure there will be more tears and more hugs and that things will feel shit and then they’ll start to feel better. Thanks to everyone who sticks with me through that.
Posting this before I head to bed and I’m
hoping to wake up and cry less tears tomorrow.
Posted by kirstyes
We still see stars shine
when they are gone. So we can
see you in your dark.
A patch of clear floor,
in a crowded, messy room
clears space in my mind.
You may feel alone
but orbiting you are those
who can pull you close.
Galaxies form from
words on a page, opening
up more world to me.
A shout, the void hears.
Fall onto a black hole and
friction makes you shine.
One small step for most
is a massive leap for some.
Cheer ev-er-y inch.
Astronauts need teams
to stay safe in the expanse
of space. There’s as much
unexplored in our
brains. Humanity wants to
find others like us.
‘Living with’ is a
mantra for alien thoughts
that invade. Come in
Peace not pieces, pick
up the flag. I was here. We
shall live together.
*nickname for the Japanese Science module on the ISS. Means hope.
Written back in April – shared tonight to remind myself whilst struggling.